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What Are Compassionate Allowances (CAL)?

Compassionate Allowances is a term given by the Social Security Administration (SSA) to identify diseases and other medical conditions that are already identified to meet the standards and requirements to receive Social Security Disability benefits. These conditions are considered to be the most serious disabilities and are treated with more urgency than other disabilities. When an application is submitted that includes a condition that is deemed to be one of the Compassionate Allowances, the application process is expedited, allowing the applicant to begin receiving benefits sooner.

The Compassionate Allowance program is designed to assist those that are suffering from severe disabilities to avoid a long, drawn out application process. For applicants that meet the criteria listed in the Compassionate Allowance guidelines, the application process can be shortened down from months to weeks.

Are you suffering from a condition that is considered a Compassionate Allowance?

If you are suffering from a condition or disability that qualifies as a Compassionate Allowance, it is important to speak to with an experienced disability attorney to discuss your application and the process to receiving benefits. A disability attorney will know not only what medical information is required to file for benefits, but also the additional documents and files you will need to include to increase your chance of being approved for benefits.

Below is the current list of conditions that are included in the Compassionate Allowances initiative through the Social Security Administration.  The SSA occasionally adds new disabilities to this list so it is important to speak with your attorney to determine if your condition will qualify for an expedited application process as a Compassionate Allowance.

Compassionate Allowances Conditions

A.

Acute Leukemia

Adrenal Cancer – with distant metastases or inoperable, unresectable or recurrent

Adult Non-Hodgkin Lymphoma

Adult Onset Huntington Disease

Aicardi-Goutieres Syndrome

Alexander Disease (ALX) – Neonatal and Infantile

Allan-Herndon-Dudley Syndrome

Alobar Holoprosencephaly

Alpers Disease

Alpha Mannosidosis – Type II and III

ALS/Parkinsonism Dementia Complex

Alstrom Syndrome

Alveolar Soft Part Sarcoma

Amegakaryocytic Thrombocytopenia

Amyotrophic Lateral Sclerosis (ALS)

Anaplastic Adrenal Cancer – Adult with distant metastases or inoperable, unresectable or recurrent

Angelman Syndrome

Angiosarcoma

Aortic Atresia

Aplastic Anemia

Astrocytoma – Grade III and IV

Ataxia Telangiectasia

Atypical Teratoid/Rhabdoid Tumor

B.

Batten Disease

Beta Thalassemia Major

Bilateral Optic Atrophy- Infantile

Bilateral Retinoblastoma

Bladder Cancer – with distant metastases or inoperable or unresectable

Breast Cancer – with distant metastases or inoperable or unresectable

C.

Canavan Disease (CD)

CACH–Vanishing White Matter Disease-Infantile and Childhood Onset Forms

Carcinoma of Unknown Primary Site

Cardiac Amyloidosis- AL Type

Caudal Regression Syndrome – Types III and IV

CDKL5 Deficiency Disorder (Effective 08/19/2019)

Cerebro Oculo Facio Skeletal (COFS) Syndrome

Cerebrotendinous Xanthomatosis

Child Lymphoblastic Lymphoma

Child Lymphoma

Child Neuroblastoma – with distant metastases or recurrent

Chondrosarcoma – with multimodal therapy

Chronic Idiopathic Intestinal Pseudo Obstruction

Chronic Myelogenous Leukemia (CML) – Blast Phase

Coffin-Lowry Syndrome

Congenital Lymphedema

Congenital Myotonic Dystrophy

Cornelia de Lange Syndrome – Classic Form

Corticobasal Degeneration

Creutzfeldt-Jakob Disease (CJD) – Adult

Cri du Chat Syndrome

D.

Degos Disease – Systemic

DeSanctis Cacchione Syndrome

Dravet Syndrome

E.

Early-Onset Alzheimer’s Disease

Edwards Syndrome (Trisomy 18)

Eisenmenger Syndrome

Endometrial Stromal Sarcoma

Endomyocardial Fibrosis

Ependymoblastoma (Child Brain Cancer)

Erdheim Chester Disease

Esophageal Cancer

Esthesioneuroblastoma

Ewing Sarcoma

F.

Farber Disease (FD) – Infantile

Fatal Familial Insomnia

Fibrodysplasia Ossificans Progressiva

Fibrolamellar Cancer

Follicular Dendritic Cell Sarcoma – metastatic or recurrent

Friedreichs Ataxia (FRDA)

Frontotemporal Dementia (FTD), Picks Disease -Type A – Adult

Fryns Syndrome

Fucosidosis – Type 1

Fukuyama Congenital Muscular Dystrophy

Fulminant Giant Cell Myocarditis

G.

Galactosialidosis – Early and Late Infantile Types

Gallbladder Cancer

Gaucher Disease (GD) – Type 2

Giant Axonal Neuropathy

Glioblastoma Multiforme (Brain Cancer)

Glioma Grade III and IV

Glutaric Acidemia – Type II


H.

Head and Neck Cancers – with distant metastasis or inoperable or unresectable

Heart Transplant Graft Failure

Heart Transplant Wait List – 1A/1B

Hemophagocytic Lymphohistiocytosis (HLH) – Familial Type

Hepatoblastoma

Hepatopulmonary Syndrome

Hepatorenal Syndrome

Histiocytosis Syndromes

Hoyeaal-Hreidarsson Syndrome

Hutchinson-Gilford Progeria Syndrome

Hydranencephaly

Hypocomplementemic Urticarial Vasculitis Syndrome

Hypophosphatasia Perinatal (Lethal) and Infantile Onset Types

Hypoplastic Left Heart Syndrome

I.

I Cell Disease

Idiopathic Pulmonary Fibrosis

Infantile Free Sialic Acid Storage Disease

Infantile Neuroaxonal Dystrophy (INAD)

Infantile Neuronal Ceroid Lipofuscinoses

Inflammatory Breast Cancer (IBC)

Intracranial Hemangiopericytoma

J.

Jervell and Lange-Nielsen Syndrome

Joubert Syndrome

Junctional Epidermolysis Bullosa – Lethal Type

Juvenile Onset Huntington Disease


K.

Kidney Cancer – inoperable or unresectable

Kleefstra Syndrome

Krabbe Disease (KD) – Infantile

Kufs Disease – Type A and B

L.

Large Intestine Cancer – with distant metastasis or inoperable, unresectable or recurrent>

Late Infantile Neuronal Ceroid Lipofuscinoses

Leigh’s Disease

Leiomyosarcoma

Leptomeningeal Carcinomatosis

Lesch-Nyhan Syndrome (LNS)

Lewy Body Dementia

Liposarcoma – metastatic or recurrent

Lissencephaly

Liver Cancer

Lowe Syndrome

Lymphomatoid Granulomatosis – Grade III

M.

Malignant Brain Stem Gliomas – Childhood

Malignant Ectomesenchymoma

Malignant Gastrointestinal Stromal Tumor

Malignant Germ Cell Tumor

Malignant Multiple Sclerosis

Malignant Renal Rhabdoid Tumor

Mantle Cell Lymphoma (MCL)

Maple Syrup Urine Disease

Marshall-Smith Syndrome

Mastocytosis – Type IV

MECP2 Duplication Syndrome

Medulloblastoma – with metastases

Megacystis Microcolon Intestinal Hypoperistalsis Syndrome

Megalencephaly Capillary Malformation Syndrome

Menkes Disease – Classic or Infantile Onset Form

Merkel Cell Carcinoma – with metastases

Merosin Deficient Congenital Muscular Dystrophy

Metachromatic Leukodystrophy (MLD) – Late Infantile

Mitral Valve Atresia

Mixed Dementias

MPS I, formerly known as Hurler Syndrome

MPS II, formerly known as Hunter Syndrome

MPS III, formerly known as Sanfilippo Syndrome

Mucosal Malignant Melanoma

Multicentric Castleman Disease

Multiple System Atrophy

Myoclonic Epilepsy with Ragged Red Fibers Syndrome

N.

Neonatal Adrenoleukodystrophy

Nephrogenic Systemic Fibrosis

Neurodegeneration with Brain Iron Accumulation – Types 1 and 2

NFU-1 Mitochondrial Disease

Niemann-Pick Disease (NPD) – Type A

Niemann-Pick Disease-Type C

Nonketotic Hyperglycinemia

Non-Small Cell Lung Cancer

O.

Obliterative Bronchiolitis

Ohtahara Syndrome

Oligodendroglioma Brain Cancer- Grade III

Ornithine Transcarbamylase (OTC) Deficiency

Orthochromatic Leukodystrophy with Pigmented Glia

Osteogenesis Imperfecta (OI) – Type II

Osteosarcoma, formerly known as Bone Cancer – with distant metastases or inoperable or unresectable

Ovarian Cancer – with distant metastases or inoperable or unresectable

P.

Pallister-Killian Syndrome

Pancreatic Cancer

Paraneoplastic Pemphigus

Patau Syndrome (Trisomy 13)

Pearson Syndrome

Pelizaeus-Merzbacher Disease-Classic Form

Pelizaeus-Merzbacher Disease-Connatal Form

Peripheral Nerve Cancer – metastatic or recurrent

Peritoneal Mesothelioma

Peritoneal Mucinous Carcinomatosis

Perry Syndrome

Phelan-McDermid Syndrome

Pitt Hopkins Syndrome (Effective 08/19/2019)

Pleural Mesothelioma

Pompe Disease – Infantile

Primary Central Nervous System Lymphoma

Primary Effusion Lymphoma

Primary Peritoneal Cancer (Effective 08/19/2019)

Primary Progressive Aphasia

Progressive Bulbar Palsy

Progressive Multifocal Leukoencephalopathy

Progressive Supranuclear Palsy

Prostate Cancer – Hormone Refractory Disease – or with visceral metastases

Pulmonary Atresia

Pulmonary Kaposi Sarcoma

R.

Retinopathy of Prematurity – Stage V

Rett (RTT) Syndrome

Revesz Syndrome

Rhabdomyosarcoma

Rhizomelic Chondrodysplasia Punctata

Richter Syndrome (Effective 08/19/2019)

Roberts Syndrome

S.

Salivary Cancers

Sandhoff Disease

Schindler Disease – Type 1

Seckel Syndrome

Severe Combined Immunodeficiency – Childhood

Single Ventricle

Sinonasal Cancer

Sjogren-Larsson Syndrome

Skin Malignant Melanoma with Metastases

Small Cell Cancer (Large IntestineProstate or Thymus)

Small Cell Cancer of the Female Genital Tract

Small Cell Lung Cancer

Small Intestine Cancer – with distant metastases or inoperable, unresectable or recurrent

Smith Lemli Opitz Syndrome

Soft Tissue Sarcoma – with distant metastases or recurrent

Spinal Muscular Atrophy (SMA) – Types 0 and 1

Spinal Nerve Root Cancer-metastatic or recurrent

Spinocerebellar Ataxia

Stiff Person Syndrome

Stomach Cancer – with distant metastases or inoperable, unresectable or recurrent

Subacute Sclerosing Panencephalitis

Superficial Siderosis of the Central Nervous System

T.

Tabes Dorsalis

Tay Sachs Disease – Infantile Type

Tetrasomy 18p

Thanatophoric Dysplasia – Type 1

Thyroid Cancer

Transplant Coronary Artery Vasculopathy

Tricuspid Atresia

U.

Ullrich Congenital Muscular Dystrophy

Ureter Cancer – with distant metastases or inoperable, unresectable or recurrent

Usher Syndrome – Type I

V.

Ventricular Assist Device Recipient – Left, Right, or Biventricular

W.

Walker Warburg Syndrome

Wolf-Hirschhorn Syndrome

Wolman Disease

X.

X-Linked Lymphoproliferative Disease

X-Linked Myotubular Myopathy

Xeroderma Pigmentosum

Z.

Zellweger Syndrome

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